Hi everyone,
new to this message board, its reassuring and sometimes comforting reading peoples postings, just knowing there are people out there in the same boat as us. My husband 37 years was diagnosed with Hodgkins disease in June, this year the day after our sons 5th birthday, so a date that will stay with us I`m sure! I really just wanted to rant as I feel I have hit a brick wall and feel very emotional all the time. I`m trying to stay positive as treatment appears to be working well although my husband has good and bad days during his treatment, but we try and make the most of his good days (2/3 days out of every fortnight) Our boys 5 and 10 years, need attention too as you would expect and I feel really worn out some days. I work full time and my husband does too, although he`s off work during his treatment. I pick up the slack which is only to be expected but its getting to me, my family don`t live near by so support is very thin on the ground. To add insult to injury my husband applied for a benefit, just thinking ahead when he moves onto half pay we thought it might ease some of the pressure, needless to say he has been refused. I am so angry....firstly with this **** disease and the impact its having on us and our family life and the lack of help and support, and I mean
real help and support. We have never asked for help of any kind before, we have both worked since 15/16 years, my children went to private nursery (which we completely funded) to allow me to carry on working and to contirbute to society and the minute we ask for some of our hard earned tax payers money back we get refused!!!!! I`m so angry......... :-(
Is it just me? Am I feeling sorry for myself, does anyone else out there feel the same......What have we ever done?????
I`m sorry I`m getting wound up now, going have a coffee and calm down. Would love to hear from people, I think I need inspiration to carry on with this slog!
Jools.