Keep up the positive thoughts and attitude!

Have you stopped looking in the toilet to see if your wee is glowing/ flourescent yet??!!!

Vix

Then I had my follow-up scan so had to come off them again for 2 weeks. (I was a bit surprised about the scan, didn't remember being told about at the beginning but I guess I just forgot!)

This time, I went up to the hospital and had another "drink" but it was only a tiny percentage of the previous amount of RAI and I could go home. So I had my scan a few days later and didn't hear anything until my next review, when they said it had been okay. I wasn't off work before the scan but I wish I had stayed off as I did feel really tired off meds.

That was over 6 months ago and there's been no mention of any more scans, so fingers crossed.....

After the review scan, I was at last changed from liothyronine to 100mg thyroxine which feels fine.

Hope you feel better on the proper dose. good luck.

After getting out of hospital I was exhausted for a week, then the second week I felt a bit better. Because no one suggested staying off work any longer, I went back to work after two and a half weeks and gradually felt back to normal after maybe a month. But everyone seems to take a different amount of time to feel normal.

There seem to be various possible side effects (although I think I've been quite lucky and not had any). Over on another forum, a girl who recently had RAI is getting pain in her neck and I think her ears, and also lost her sense of taste. Someone else got a blocked salivary gland. Others have also mentioned dry skin and hair and weight gain. Could be I'm just used to being tired though, cos I don't feel I've had much energy for years!!!!

I definitely feel better on Thyroxine than I did on Liothyronine, which gave me a really fast pulse and heartrate, but my medication wasn't changed until after my follow up scan 3 months later. Your consultant will recommend a dose for you (maybe 100 or 150mg) and will alter it according to your blood results.

Mention your symptoms to your consultant, they might be quite common and they'll be able to advise you. x

I take my thyroxine in the morning too, as advised. ( I know some people take it in the evening but I haven't tried that yet, not sure what effect it would have).

I'm wondering, though, if I need to wait an hour after my dose before taking food? The consultant didn't mention this, and when I asked the chemist she was a bit vague and said maybe 15-30 minutes, but I'm sure I read somewhere that it should be an hour?

I'm just keen that my TSH level should be as supressed as possible, and want to give my thyroxine the best chance to work without taking any more than I have to, but an hour is not ideal as I end up rushing off to work with no breakfast! What are your thoughts on this?

Thanks x

There is research looking at taking in evening on empty stomach..but results not conclusive as yet...

Hope that helps!

Vix x

Very useful to know that I only need to wait half an hour after food. I did think an hour might be a bit over-zealous, but am still at the stage where I'm a bit wary of letting my TSH creep up at all, and trying to give the medication as much of a chance as possible. I guess even if the level ever rose I would just take a higher dose, but I'll see how things go in the meantime.

Luckily I don't have to take calcium tablets, even after two surgeries, which I fully expected to cause some problems. However, my calcium level is still being tested religiously as apparently it could still drop - nearly a year later!

Anyway, thanks again for the info. xx