15 Replies Last post: 03-Mar-2010 11:16 by leanndale   1 2 Previous Next
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My Mum was diagnosed with breast cancer in September 2008. She had chemotherapy and radiotherapy but point blank refused a mastectomy. She is really stubborn and said she came into the world with both breasts and was going out with both and now it looks like she is!

I really don't know what's going on though!! My Mum lives a two hour drive away from me and I am a single mother to an 11 month old baby and I work part time and it is really hard for me to travel down to see her a lot. I speak to her on the phone but she doesn't tell me the whole story. She lives with her husband who is very controlling and he resents her speaking to her children (me and my brother), he was always like this even before she had cancer. This is why they live so far away, it's like he's taken her away in my eyes.

Well anyway, after my Mum had all the treatments, a few months later she rang me out of the blue and said she'd been back to hospital and said that the cancer had come back and there's nothing they can do but they won't tell her how long she has left! Alls I know is that she is now in a hospice for a few days which she says is because she soiled herself in bed at home and because they need to do scans! Also she recently had a chest infection and the nurses wanted her to go into the hospice then but she refused. Also, my Mum has to have dressings on her breast because it leaks! I'm not sure what this means, she said it is the fluid around the tumour! I know I sound totally clueless but i am, my Mum won't tell me or my brother anything but just vague details and my mum's husband doesn't even want us in the picture. I think my Mum doesn't tell us because she doesn't want to worry us but it is so worrying not knowing as well!

I just feel like I could burst into tears whenever I think about my mum dying. The last time I saw my Mum was Christmas Eve, and she looked really weak and had troubling standing and walking. I just feel really down about things, I've had post natal depression and I am raising my baby alone and my Mum got diagnosed with her cancer around the same time as my 20 week scan, I feel like I could just burst with worry at any minute. Is there anywhere I can find out more information about what's happening, I don't want to ask my Mum because sometimes when I bring it up she gets upset and I don't want to upset her. Also, I feel really mean that i'm not seeing my Mum more but it's so hard, I have absolutely no one to look after my baby, I have a childminder when i'm at work but I can't afford to pay to use her any other time, money is really tight and my baby's dad is useless, I have no other family and all my friends have young babies themselves!

I just want everything to be okay but i know it's not going to be.

Click to view katedenyer1's profile
2. 21-Jan-2010 16:49 in response to: worriedgirl
Re: I really don't know what's going on!
I am so sorrry to hear what you are going through at the moment, you are being so brave and strong. It is very hard not to know what is going on, I know what it is like when you are not told anything and you are trying to find out and guess...i would say that the cancerresearch website is really helpful, but also to let your mum know how much it would help you to know what is going on, and if she says no to that just be there for her, on the end of the phone, whenever you can be, and if she is ready to talk to you about it at some point she will be able to reach you. i can't imagine how hard it must be to be bringing up your baby alone when this is going on around you - it feels like too much for one person to deal with. i would suggest you speak to marie curie to see if there is anything they could do to help - even if it about helping you find a creche near your mum that is not too expensive where you could leave your baby to visit your mum, i have heard they are great at finding practical ways to help. there is nothing that anyone can say right now that is going to make it ok, but know that we are sending you hope and strength and you are not alone, you can message at any time and someone will be here to lean on...thinking of you, hugs, kate x
Click to view Roseanna's profile
3. 21-Jan-2010 19:02 in response to: worriedgirl
Re: I really don't know what's going on!

Kate has given you some very good advice. I thought it might help to have a perspective from "the other side" so to speak. In the last couple of days I have had X-rays and a CT scan and now have to wait to see the consultant on Monday, though several doctors have explained that I have an abnormality high in my lungs and they will need to do a biopsy next. It doesn't take a genius to work out that it is lung cancer - especially as I now realise I am coughing blood!

My major worry and the thing that is reducing me to tears constantly, is how will I cope with telling the children. They are in their 20's and still very vulnerable. I know they are going to be absolutely devastated, just like you are. It will be the hardest thing I can imagine - facing their grief and I am sure my daughter will go completely to pieces.

It is possible that your mother is protecting herself, as well as you, and her husband may be trying to help - however unhelpful he may seem. She may also be trying to reassure you when she says how she has support from others.

I do really feel for you and because of your post I will try to be as open and as honest with my children as I can be, once I have some proper information to pass on.

Hope this helps in some small way and I hope that there will be a way for you to spend time with her and it works out for you.

Click to view katedenyer1's profile
4. 21-Jan-2010 23:15 in response to: Roseanna
Re: I really don't know what's going on!

Dear Roseanna,

i just wanted to write to let you know i am thinking of you and wishing you strength when you tell your children...i know how hard it was for my mum and dad to tell me and my sister (we are both in our 20's and we are a very close family) i know it was the hardest thing in the world for them to tell us, especially the latest bad news. but we have all come together and we will face it together, and although the first few days and weeks of them knowing will feel like all your hearts are breaking, it gets a wee bit better and i hope, as we are doing, that you can all enjoy spending time together and drawing strength from one another just by being together. you sound like a lovely woman and i am sure your children are the world to you - i will be thinking of you. if you would like any advice from me about what to say or how to talk to them please ask - i found it so helpful on this forum when a man about my dad's age gave me some advice about how to handle things with my dad...i'm here, as everyone here is, if you need us. kate x

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5. 22-Jan-2010 16:57 in response to: katedenyer1
Re: I really don't know what's going on!
Thankyou Kate. That is very kind of you. I don't want to hijack this thread though, so may post seperately when I feel more up to it.
Click to view broons's profile
7. 30-Jan-2010 18:47 in response to: worriedgirl
Re: I really don't know what's going on!
hi ive just read ur story and i want 2 say how sorry i am tht u have 2 go thru all f this alone. i have sum familly bit they in canada and i have an uncle who is totally useless!! every time i go 2 the hospice im desperate 2 ask questions but like u i dont want 2 ask my mum, i was down 2 day and she was very much in denial about having the cancer and cant understand why she is in the hospice. i hated having 2 persuade her 2 go in but i couldnt cope i have 3 ove a familly and zero support. its horrible 2 watch the 1 we love dying our mums are meant 2 allways b there eh? ur not alone and now i know im not alone either.
Click to view broons's profile
9. 31-Jan-2010 18:24 in response to: worriedgirl
Re: I really don't know what's going on!
hi worried girl thanx 4 getting bk 2 me. im terribly sorry 2 hear tht ur mum has so little time left u must b devastated. my youngest is 11 and she is not really understanding the severity ove her grans illness so i gather i must b extra hard ur little 1 bn at such a young age and having 2 cope with ur mum. i went 2 the hospice 2day and mum seemed perkier but just wont accept tht she is ill and the meds they have her on are taking away anything tht she had. the doc told her yesy tht the tumour is likely growin and the pelvic area but she still thinks its just fluid.she wants home this wk but i dont know how im going 2 cope if tht happins. she refuses any help so its just down 2 me. u said tht the docs were willing 2 talk 2 u? was tht in the hospice? im going down again 2mor and i would really like 2 know wots going on. ots not nice bn told they have x amount ove time but thts my way ove ******* 2 terms with it. its nice 2 know im not alone thanx again 4 getting bk 2 me
Click to view broons's profile
11. 01-Feb-2010 19:43 in response to: worriedgirl
Re: I really don't know what's going on!
hi worried girl how has things bn 4 u 2 day hope not 2 bad? W ent down with my cousin 2dat 2 c mum and i got quite a shock!! she was flat out on her bed and looked dreadful i didnt know wot 2 say. the docs had bn round 2day and had words but as per she wont tell me. Defo not good she was crying and refusing 2 have another mri and wants 2 go home. She is busy making plans 2 do as much as she can when she gets out asap in the space ove 24hrs everything has changed. all she would tell me was tht the docs were very concerned 2 find where the fluid is ******* from, i went thru this lastyr when the tumour broke thru the skin the smell isent very nice and it was present 2day. let me know how ur mum is and thinking ove u k urs broon xx
Click to view katedenyer1's profile
12. 02-Feb-2010 21:21 in response to: worriedgirl
Re: I really don't know what's going on!
hi, i just wanted to write to see how you are today? it sounds like a tough week for you....it is horrible feeilng anxious and sick all the time, i hope you are taking some time to try some relaxation, even if it just a bath or some time out just for you to try to relax a little. i can't imagine how hard it must be to deal with this and be mum to your little girl. i would say that you are only human, so if you find yourself snapping at her once in a while don't beat yourself up about it too much, i am sure you are very loving and resassure her and that the times you snap are few and far between. i totally identify with what you are saying about not wanting your mum to be depressed or worried about dying, i fee the same way about my dad, and try to fight against it but have realised in the last few days that all i can do is take it one step at a time, and be there for my dad if he wants to talk about it and just to 'be' with him if he doesn't want to talk about it. and i understand so well feeing guilty when you are not with them, but you can't be all the time and i think they need some time alone to process what is going on themselves. my thoughts are with you love kate x
Click to view broons's profile
14. 02-Mar-2010 22:12 in response to: worriedgirl
Re: I really don't know what's going on!
hi worried girl im sorry 2 hear things havnt bn good 4 u. my mum has the hosp 2mor as she has somthing wrong with her stoma not looking 2 good. she has had atleast 3 bouts ove oral thrush in the matter ove wks e at our wits end. she came out the hospice with the morphine driver and its bn going up and up as the wks go by. we are waiting on an app 4 an mri scan even tho we know its not good. she has started havin bleeds like a period even tho she has no womb and the smell bk. mum very aware ove the smell and we try and make sure we cant smell anything i mean how would we b in tht situation?. ive bn off the board prob coz i thot thinks were getting better in other words kidding myself. we had out daughters 21st birthday and we were told 2 make it the best we could and she had a gr8 time. now im getting scared i know this is it she has certain things come bk and theres no way bk. thanks 2 everybody who has enough 2 cope with and made the time 2 say hi. all the best and god bless 2 those living andd going through this terrible illness yours broons x

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