22 Replies Last post: 22-Feb-2010 22:52 by wakemeuppls   1 2 Previous Next

I just don't know what to do

07-Feb-2010 18:51

Click to view Beverley7's profile

My MiL was diagnosed in Jan and given 4 - 6 weeks, we have just returned from visiting her at home in the north, she came out of hospital 2 weeks ago. She is bed bound, has been on Dexamethasone and is now on Midazolam, she has been sleeping most of the weekend around shouting out in pain and screaming. It is just AWFUL.

I didn't want to leave, we live in the south with our 3 boys 20,11 and 7. She lives in the north with my Father in law and sister in law. My mum in law is 64 and I think only has days left. 250 miles is a long way to drive when you are on limited time. Also, my hubbys nan who is 91 lives in sheltered accommodation, lives in the same village as my in laws and has taken this news badly, she is going senile. We went down to see her every day also and she is laying the table for her and her husband for dinner, he died 18 years ago. A neighbour found her wandering around outside looking for her hsuband the other morning at 7am. I don't think she will be around much longer either. I have told my husband that I will go up by train if things start deteriorating quickly to help out and be with her, but I don't know what will happen? I have tried to explain to the boys but it is so difficult, I have just been honest with them, they seem ok about everything though.

I just find it difficult to deal with that MiL was ok at Christmas, no symptoms, nothing, then a scan and all hell breaks loose and she has 4 - 6 weeks! It is not fair!

We have never been the best of friends but this has really brought us closer and I feel so guilty. I have been feeding her, stroking her hair, holding her hand etc. She has at least 6 brains mets, liver secondary and god knows what else. I know the end is coming and not sure how I amgoing to be able to support everyone and hold it together at the same time.

I am not religious or anything but htought it may help writing down on here. Any help would be very much appreciated, thankyou.x

Click to view wakemeuppls's profile
1. 07-Feb-2010 20:11 in response to: Beverley7
Re: I just don't know what to do

Bev, Hi. Its Sara. I am so sorry I haven't messaged you for so long. I am devastated for you and your family and my heart, honestly and truly goes out to you for many reasons. I am sending you so much love, big hugs hugs and as much strength as I can. Do NOT feel guilty. What is happening is absolutely dreadful - for you all - and you cant change what has happened before but the fact that you weren't the 'best of friends' before does not matter. What matters is what has happened since the diagnosis and the fact that you have been there as a team, that you have been a great support to both your MiL and to all of your family and the fact that you have grown close. What matters is that you have fed her, held her hand and told her that you will look after her boys and that you will keep her family together. What matters is now, not what has gone before. So please, dont feel guilty, you dont have the energy for that and she would not want you to.

What professional help are you getting? As a trained nurse, if she is shouting out my concern would be that she is in pain, but it may be that she is just confused from the pain medication. I know that must be horrific for you to watch - my God I cant tell you how sorry I feel for you; Speak to the district nurses/palliative care nurses. They are wonderful and will help you ensure that she is settled and pain free.

Bev, I am religious. I am not a "happy clapper" as some might say but I truly believe in God and I believe that God calls for people to be his angels. I truly believe that your MiL will be with Him when she leaves you. You will be desperately sad that she has gone and you will miss her terribly, but she will always be with you. Dont be sad that she cant share experiences with you - she will; you just wont see her.

Oh Bev - I cried buckets as soon as I read your message; I know this will be us one day which makes it all the more hard to read. Nothing I can say will make you feel any better I know that. I just want you to know that I am thinking about you all. With love, S xx

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3. 07-Feb-2010 20:44 in response to: Beverley7
Re: I just don't know what to do

Hi Bev

You havent upset me. In all honesty I feel lucky in comparison. Mum is due her second round of chemo on Tues so long as her bloods are ok tomorrow. Most of her hair has come out now so she is wearing her wig. With her make up on (very rare to see her without!) she looks beter than she has done in the past few months! She looks fantastic. Her right arm does not work well which frustrates her no end, but it works a bit (she can wash/feed herself but doesnt have enough control to write). She is not in pain, she is not confused. I am spending every second away from wok with her - and I am like a japanese tourist with my new camera! I tell her repeatedly every day that I love her. Oh God, I will miss her so much. I truly understand how hard you must be finding this. as a nurse,I know what is coming ultimately, which I why I have been so much more upset than the rest of the family.

Are you going to come back up? It must be so hard being so far away. I find it difficult being only 20 minutes away! The nurse is possbly right though; Your MiL may have hung on to see you all. It sometimes happens that way; I know it did with my Grandad. We live in Chorley (Bolton at the time) and he in Gerrards Cross. We were told he would not be long so we got straight in the car to go (4 hour journey - without a wash or teeth/hair brush etc) and he died within about an hour of us arriving

Gonna give my mum a quick ring before she goes to bed then hope to chat again soon. With love Sx

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5. 09-Feb-2010 23:32 in response to: Beverley7
Re: I just don't know what to do

Beverley,

My thoughts are with you!

Don't take it too much too heart if Mil decides not to wait for you as sometimes they need to do it alone.

After all she knows you were with her over the last 5 weeks when she needed you and her son with her.

My Fil died last may, we sat with him in the hospital for four days, taking it in turns to go for a cuppa in the canteen(the senior nurse told the other nurses not to keep giving us tea!)

We slept in the armchair in turns next to his bed! Then when we couldn't cope any longer we booked into a travel lodge for the night. left him at 9.40pm and got a call from the hospital at 10.40pm to say he had gone! He wanted to be on his own I guess?


Take heart that for your Mil it was very quick and probably harder for you and your family to cope with the shock of it all. Will be thinking of you tomorrow.

Take care

Click to view wakemeuppls's profile
6. 10-Feb-2010 07:44 in response to: Beverley7
Re: I just don't know what to do

Bev

My heart goes out to you all. I am thinking about you and praying for you. Stay strong - keep in touch when you can.

Sending big hugs x x

Click to view wakemeuppls's profile
8. 10-Feb-2010 16:50 in response to: Beverley7
Re: I just don't know what to do
I am so glad you made it in time. I have said prayers for you all and hope you MiL will soon be at peace. Thinking of you all x x
Click to view wakemeuppls's profile
9. 12-Feb-2010 16:51 in response to: Beverley7
Re: I just don't know what to do

Hi Beverly

Dont know when you will get this message. Know you havent been messaging for a couple of days and was just thinking about you and hope you are doing ok.

Sara x

Click to view wakemeuppls's profile
11. 12-Feb-2010 17:02 in response to: Beverley7
Re: I just don't know what to do
You poor things. How are your hubby and kids bearing up? and how is your FiL? Are you getting a lot of support from the community nursing teams?
Click to view wakemeuppls's profile
13. 13-Feb-2010 07:28 in response to: Beverley7
Re: I just don't know what to do

HI Beverly

I hope your MiL had a settled night and you managed to get some rest. The support you are getting sounds fantastic;I'm really glad about that.

My Mum is doing ok. She cant get her steroids down past 5 without experiencing more symptoms which is worrying but she is still functioning well independently at the moment. Her right shoulder has dropped a lot as she has lost muscle tone due to nerve damage from the brain mets. She wants to see a neuro physio so we are going next week - not sure what good it will do but she wants to try so try we will. It is my daughters 10th Birthday on Thursday. Mum has confided in my Sister that she's worried this is the last birthday she will share with her; I know it will be so I am going to have to try so hard not to be emotional. I am still so emotional though, ridiculously so. I think there has only been 1 or 2 nights since Dec 30th where I havent cried myself to sleep every night. I have a knot in my stomach constantly. Its just unbearable the thought of losing someone you love so much; That said, I have also thought, even now (God forgive me) that I wish the end would come quickly as I cant bear her going through all this; I cant bear thinking that life might be like this for us all for a long time - you live it eat it and breath it dont you? Of course I dont mean it; I dont want her to die at all and I know I will feel so guilty that I thought that when she does pass.

Anyway, enough about me. Just want you to know I have been thinking of you. Take comfort in the fact that all your efforts are contributing to a 'good' death. Not many people are lucky enough to have their entire loving family with them when they pass away which your MiL will have.

(Where abouts in Lancashire do your iL's live?)

Take care

Sara x

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